(269) 8:30 AM - 9:30 PM(CST) M-F
Sat - 10:00 AM - 4:00 PM
Mar 19 2016
Tips To Raise Rare Disease Awareness With Wristbands
Custom Wristbands Raise Awareness Of Rare Diseases
Use custom designed awareness bracelets to show your support. Rare Disease Week on Capitol Hill is February 23-27, 2015, and Rare Disease Day is Friday the 27th. The objectives of these awareness campaigns are to both bring attention to rare diseases and pass bills that allow for more funding of rare diseases. Rare Disease wristbands can be used for events during the week or all year long. Choose your message for your custom bracelets.
Messages for Rare Disease Wristbands
Messages such as “Together We Are Strong” or “Support Rare Disease Legislation” are great for events or any time. Using awareness colors for specific diseases or artwork such as the generic awareness ribbon can also add to your custom bracelet.
Facts About Rare Diseases
A rare disease is defined as one that affects fewer than 200,000 Americans at any given time. According to the National Institutes of Health, there are between 6,000 and 7,000 rare diseases affecting from 25 to 30 million Americans. Often, there are only a few doctors or a few medical centers with in-depth knowledge of a rare disease, making specialized care a challenge. Treatments for rare diseases are hard to come by because drug companies cannot make a profit on a treatment that will be used by a small number of people.
The purpose of events such as Rare Disease Week on Capitol Hill is to make a difference legislatively by passing laws that provide incentives for drug companies to invest in treatments for rare diseases. For example, the Gabriella Miller Kids First Research Act redirects $12.6 Million in funding from political conventions to the National Institutes of Health (NIH) Common Fund to support transformative research for childhood cancer, autism, Fragile X syndrome and other rare pediatric diseases.
Create Custom Wristbands Online
Whether you’re buying a wristband just for you or for a group, Rare Disease wristbands can be easily created online using our tool. Why buy custom bands from Amazing Wristbands?
Create your customized Rare Disease wristbands online today!
Last modified on: March 19th, 2016
No Comments »
Leave a comment